Last updated: June 22, 2026

 

Our commitment

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We respect your privacy. We collect only the information we need to support our advocacy work and keep you informed.
We do not sell your information.

 

What we collect

 We may collect:

• Your name

• Email address

• Postal code

• Information you share about your experiences with FSCD or disability services

 

You can choose how much or how little you share.

 

How we use your information

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  We use your information to:

• Respond to you and provide support or information

• Send updates about FSCD advocacy

• Share ways to get involved (e.g., emails, meetings, actions)

• Better understand issues families are facing

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  We only use your information for these purposes.

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Email updates and communications

  If you share your email with us:

• You may receive updates, including information about actions, events, and relevant news

• You can unsubscribe at any time by contacting us or using the unsubscribe option

• We will not add you to unrelated mailing lists

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Consent

  By sharing your information with us, you are giving consent for us to use it as described above.
  You can withdraw your consent at any time by contacting us.

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Sharing your information

 We do not sell or trade your information.
 We only share information when:

• You have given permission

• It is necessary to support you (for example, connecting you with another organization—with your consent)

• It is required by law

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How we protect your information

 We take reasonable steps to keep your information safe:

• Using secure tools (e.g., Action Network)

• Limiting access to people in our group who need it

• Team members who have access to personal information are expected to follow confidentiality practices

• Avoiding collecting more information than necessary

 As a small, volunteer-led group, we cannot guarantee perfect security, but we take privacy seriously.

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How long we keep information

 We keep personal information only as long as needed for our advocacy work.
 We make reasonable efforts to remove information when it is no longer needed.

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Your rights

 You can:

• Ask what information we have about you

• Ask us to correct or delete your information (where possible)

• Ask us to stop contacting you

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Contact us

 If you have questions or concerns about your privacy. 

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